Monday 5 March 2012

In the words of Gloria Gaynor ...


I am Rosamund Mary
I was born on the Isle of Man
I was adopted when I was 12 weeks old
I have a rare form of Von Willebrand's disease
I have less than 3% Von Willebrand's factor
I have less than 1% factor 8
I have injections to replace the clotting factor and stop bleeding
I learned to do them myself when I was 14
I started my periods when I was 13
I would bleed for 3 weeks out of 4 and then start all over again
I have taken hormone pills ever since then to keep the bleeding under control
I have always had acne on my chest from the hormone pills
I used to have horrendous period pain every month
I once had to stop my car and knock on a strangers door for help because I was blacking out from period pain
I now take hormones continuously because it's safer for me not to bleed
I was given Hepatitis C from contaminated NHS blood products
I was probably exposed with every injection I had in the 70's and early 80's
I had on average 1 injection a week then to control bleeds
I was not told by my specialist about my infection with Hepatitis C
I found out by accident at another hospital
I had a 12 month and then a 6 month course of treatment for the Hepatitis C
I had a biopsy before the 2nd course of treatment
I lost six pints of blood and nearly died after a bleed in my liver
I discovered just before I got married the Hepatitis C was no longer detectable in my blood
I have been ill with chronic fatigue ever since those treatments
I now have on average 2 injections a week of clotting factor to control bleeds
I have been exposed to vCJD
I have been unable to work since 2008
I have been unable to have children because of my ill health

I am what I am
I am just right
I am all this
I am me





Sunday 22 January 2012

Funny Blood the book - how to get yours ...



If you would like a copy of my mum's shiny new book Funny Blood - which is about adopting me as a baby, then finding out I had a severe bleeding disorder and the fun that ensued bringing me up - it costs £10.50 plus £2.50 postage (within the UK) if required. Multiple copies will require multiple postage though we may well do you a deal If you ask.

Funny Blood cannot be had from all good retailers I'm afraid as mum has self published. Until of course we hit the best seller list, which may take a while as we've only had 500 copies printed!

You can either send your cheque for the total amount, made out to Juliet Batten, to me:
35 Shrubbery Street,
Kidderminster,
DY10 2QZ
UK
or mum:
28 Franche Road,
Wolverley,
Kidderminster,
DY11 5TP
UK
If you do this please include your name, address and the number of copies you require.

Or if you want to send us a BACS payment please send us an email to roshasfunnyblood@gmail.com with your name, address and the number of copies you'd like and I'll send you the bank account details.

We will then post, or personally deliver if you're local enough, your book.

I will be putting it on Amazon but because mum's funded this herself I'd encourage you to buy direct from us because that way she gets a wee bit more from each book to help pay for the cost of producing it. We might just up the price a touch on Amazon to compensate, not sure yet. I'm dead proud of her I am, cos it's the first book she's ever written and she's been working on it for 8 years :D






Once you've read it we'd really appreciate your feedback.

One last thing - it is about me so I understand if that puts you right off ;)