Not terribly dramatic I know, just a few little bloody snippets . . . won't impress you haemo's out there!
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Queue You Too WIP
9 months ago
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World Haemophilia Day
Raising awareness of haemophilia and bleeding disorders around the world
ME Awareness
Supporting increased awareness of ME / CFS
About Me
- Ros
- I am a 40 year old woman with type III von Willebrands disorder. I live in Worcestershire in the UK with my husband Ade and two cats (Smudge and Flash). I give myself clotting factor injections at home when I have a bleed. I contracted Hepatitis C through contaminated blood products, probably when I had my very first factor injection at only a few months old. I have had two courses of treatment for Hep C - 12 months of interferon in 1999 and 6 months of pegalated interferon and ribavirin in 2002/3. Both courses of treatment were horrendous. The first lot was unsuccessful and the second one luckily worked. My blood has tested negative for Hep C ever since. However since the interferon treatment I have been left with a 'tendency' as my doc put it, to have periods of post-viral / chronic fatigue. I believe this is linked to the treatment but that is only my opinion. The only other things you need to know about me are that I am adopted (from the Isle of Man when I was three months old), that I make really good flapjack, banana cake and chocolate brownies (orders welcome), and that my favourite way to pass the time is a good old chin wag with my friends and family ...
5 comments:
love the blog subject header thing!
There's a WHITE fabric Police alert going on here mi dear!
I was in clinic the other week and this (lobotomised?) mild haemo bloke was covered in blood his jeans and top were soaking, it was like one of our periods let loose on society petal. Daft TARD had only gone and had 3 teeth removed with no cover *bangs head on soft pillow*
I've been saving the header for ages - think it might pop out again sometime soon. Pop up, pop up...god it's getting worse...I might use the title again sometime - there, is that less entendry??
I'm rebelling with the light colours, think it's my way of outing myself as a bleeder - not that I need to do that, hehe, you cannae shut the bloody woman up.
He's a bloke what do you expect *ducks*...just kidding :)
I'm surprised that his doctors let him go without the cover. Are London docs different to Leeds docs?
Ros, I like the bloody pictures me dear. But to be honest, they all (except the very bottom pic) look like food stains;)
...Half dissolved strawberry flavoured winegums wrapped around your tooth...Red wine gravy down your jeans...Chocklick sauce from those delish profiteroles all up your dress...forgotten Malteasers melting in your back pocket etc.
It's food isn't it;)
And the pic of the eye is you winking at us...but the shutter on the camera went off too late;)
Jaexx (just one of a million, billion *ducks*;)
P.s. Pop out? Pop up? What's the difference?
Popping in any direction is good to me;)
pop out-pop up>?!!?!? (Ade's in for a good night!) - I don't what it is about those words but I'm getting bad flasback to a 80's male stripper and asking me to rip his press-studs open *screams*
"I'm surprised that his doctors let him go without the cover. Are London docs different to Leeds docs?" Fair point well-made Jae, it says 2 things: 1, The (singular)Leeds haematologist is SHIT 2There are MAJOR issues with patients/knowledge/education/being kept in the dark 3, The mild haemo in question may have been a bit daft, he didn't tell his Drs he was going to have 3 teeth removed just went to his local dentist and had it done(that level of dental work on a bleeder should rightly be done in a dental hospital-of which we have one in Leeds).
Actually, food yes! I eat a lot of beetroot, occasionally sans cutlery ie with my fingers, sometimes I see the look of fear on my friends faces...
I also buy a bit of fake blood from Halloween or theatre supplies just in case I want to get out of a meeeting fast ;)
Hope you two's are all good today?
Ros get watching TMB!
H xxx
When I said 'it says 2 things'-I was just testing you!
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