Queue You Too WIP
9 months ago
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World Haemophilia Day
Raising awareness of haemophilia and bleeding disorders around the world
ME Awareness
Supporting increased awareness of ME / CFS
About Me
- Ros
- I am a 40 year old woman with type III von Willebrands disorder. I live in Worcestershire in the UK with my husband Ade and two cats (Smudge and Flash). I give myself clotting factor injections at home when I have a bleed. I contracted Hepatitis C through contaminated blood products, probably when I had my very first factor injection at only a few months old. I have had two courses of treatment for Hep C - 12 months of interferon in 1999 and 6 months of pegalated interferon and ribavirin in 2002/3. Both courses of treatment were horrendous. The first lot was unsuccessful and the second one luckily worked. My blood has tested negative for Hep C ever since. However since the interferon treatment I have been left with a 'tendency' as my doc put it, to have periods of post-viral / chronic fatigue. I believe this is linked to the treatment but that is only my opinion. The only other things you need to know about me are that I am adopted (from the Isle of Man when I was three months old), that I make really good flapjack, banana cake and chocolate brownies (orders welcome), and that my favourite way to pass the time is a good old chin wag with my friends and family ...
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